Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice
article
Objective: The use of patient reported outcomes (PRO) in routine clinical practice is becoming increasingly common, but there is limited knowledge about the development and implementation of PRO. The objective of the current paper is to provide a thorough description of the development and implementation of a PRO on health related quality of life (HRQOL) - the QLIC-ON PROfile - in clinical paediatric oncology practice. Methods: The development of the QLIC-ON PROfile is explained by elucidating important choices: the HRQOL instrument, the professional that uses the QLIC-ON PROfile, the optimal form of HRQOL feedback and whether or not a clinically important difference is reported. The description of the implementation of the QLIC-ON PROfile focuses on the education and commitment of the professional that uses the QLIC-ON PROfile. Study design and outcome measures are also elaborated on. Results: Important considerations regarding the development and implementation of PRO interventions are reported. These considerations have also resulted in educational material. Conclusion: Our study adds to current knowledge of PRO research. This paper can be used as a practical guide for researchers and other professionals, who are interested in setting up PRO interventions in any clinical setting. © 2010 Elsevier Ireland Ltd.
Topics
Clinical practiceDevelopment and implementationHealth related quality of life (HRQOL)Paediatric oncologyPatient reported outcome (PRO)Physician-patient communicationarticlechildhood cancerclinical practiceconsultationdecision treedoctor patient relationinterpersonal communicationintervention studymedical specialistpatient assessmentpatient reported outcomepediatric oncologistpriority journalquality of lifeself reporttrainingAdolescentChildChild, PreschoolCohort StudiesFemaleHealth Status IndicatorsHumansInfantInfant, NewbornIntervention StudiesMaleMedical OncologyOutcome Assessment (Health Care)PediatricsPhysician-Patient RelationsPsychometricsQuality of LifeQuestionnairesSelf-Assessment
TNO Identifier
954153
ISSN
07383991
Source
Patient Education and Counseling, 81(2), pp. 235-244.
Pages
235-244
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