De geschiedenis van de registratie en frequentiebewaking van aangeboren afwijkingen in Nederland [The history of registration and monitoring of congenital anomalies in the Netherlands]
article
In the early sixties worldwide thousands of infants were born with serious limb reduction defects caused by maternal use of thalidomide (Softenon1) during pregnancy. After this epidemic many countries started birth defect registries to make monitoring possible. In the Northern Netherlands in 1981 a Dutch center of the European Registration of Congenital Anomalies (EUROCAT) started: a ‘‘registration in depth’’ registering diagnoses and several potential risk factors. Besides, a ‘‘registration in width‘‘ was started by combining data of the National Obstetrics Registries (LVR) and National Neonatal Registry (LNR). This combined LVR/LNR data contains information on birth defects that can be diagnosed soon after birth. Data on a limited number of risk factors are available. Mean-while the registries have been used for a diversity of tiologic studies and reports on various aspects of the epidemiology of congenital anomalies. A good basis has become available for long term studies on the occurrence and prevention of congenital anomalies.
Topics
TNO Identifier
746547
Source
TSG: Tijdschrift voor Gezondheidswetenschappen, 86(2), pp. 86-91.
Pages
86-91