Ouder worden met een aangeboren hartafwijking: Hoe is de kwaliteit van leven? [How is the quality of life in aging persons with a congenital heart disease?]
article
In adults (aged 17 to 32 years) with mild or complex previously operated congenital heart disease, health-related quality of life (measured with the TAAQOL) and subjective health status (measured with the SF-36) were compared with those of the general population. In addition, the relation between these measures and physical indices was determined. Patients with a mild defect (n = 80) had no significant different health-related quality of life and health status than the general population. However, in the group of patients with a complex disease (n = 76), health-related quality of life was significantly worse than that of the general population in the domains gross motor functioning, and vitality (p < 0.01). Patients had a significantly worse subjective health status than the general population on the domains physical functioning, role functioning physical, vitality, and general health perceptions (p < 0.01). Correlations between health-related quality of life and subjective health status on the one hand and physical indices on the other were poor. In conclusion, patients with a mild congenital cardiac malformation have a general quality of life comparable with the general population. However, the results indicate that patients with complex congenital heart disease need specific attention for their physical quality of life. Objectively determined physical indices are only weakly related to health-related quality of life. Therefore, when evaluating health-related quality of life, dedicated questionnaires such as the TAAQOL should be used.
Topics
TNO Identifier
237100
ISSN
03767442
Source
Tijdschrift voor Kindergeneeskunde, 71(3), pp. 157-164.
Pages
157-164
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