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Kamphuis, M. (author), Vogels, T. (author), Ottenkamp, J. (author), van der Wall, E.E. (author), Verloove-Vanhorick, S.P. (author), Vliegen, H.W. (author)Objective: To evaluate job participation, careerrelated problems, and actual job problems in adults with complex congenital heart disease (CHD) compared with adults with mild CHD and reference groups. Design: Cross-sectional study. Setting: Patients were randomly selected from the archives of the Department of Pediatric Cardiology, Leiden...article 2002
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Kamphuis, M. (author), Vliegen, H.W. (author), Verloove-Vanhorick, S.P. (author), Ottenkamp, J. (author), Vogels, T. (author)Objective. To evaluate employment, career problems and job-related handicaps in adults with complex or mild congenital heart disease (CHD). Design. Cross-sectional. Method. Data were obtained from 76 patients with complex and 80 with mild CHD who were known to the Department of Paediatric Cardiology at the Leiden University Medical Center, the...article 2005
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Kamphuis, M. (author), Zwinderman, K.A.H. (author), Vogels, T. (author), Vliegen, H.W. (author), Kamphuis, R.P. (author), Ottenkamp, J. (author), Verloove-Vanhorick, S.P. (author), Bruil, J. (author), TNO Preventie en Gezondheid (author)This study represents the development and validation of a cardiac-specific module of the generic health-related quality of life (HRQoL) instrument, the TAAQOL (TNO/AZL Adult Quality Of Life), for young adults with congenital heart disease (CHD). Items were selected based on literature, an explorative previous study in CHD patients, interviews...article 2004
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Kamphuis, M. (author), Verloove-Vanhorick, S.P. (author), Vogels, T. (author), Ottenkamp, J. (author), Vliegen, H.W. (author), TNO Preventie en Gezondheid (author)Objectives: To evaluate difficulties in daily life, and satisfaction with level of knowledge about their disease, in patients with congenital cardiac disease in order to improve counselling. Methods: A self-administered questionnaire was completed by 80 patients with mild, and 76 with complex, congenital cardiac disease. They were aged from 17...article 2002
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Verrips, E.G.H. (author), Vogels, T.G.C. (author), Koopman, H.M. (author), Theunissen, N.C.M. (author), Kamphuis, R.P. (author), Fekkes, M. (author), Wit, J.M. (author), Verloove-Vanhorick, S.P. (author)Background: The 56-item TNO AZL Child Quality Of Life (TACQOL) questionnaire was developed to meet the need for a reliable and valid instrument for measuring health-related quality of life (HRQoL) in children. HRQoL was defined as health status in seven domains plus emotional responses to problems in health status. The TACQOL explicitly offers...article 1999
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