Employment in adults with congenital heart disease

Objective: To evaluate job participation, careerrelated problems, and actual job problems in adults with complex congenital heart disease (CHD) compared with adults with mild CHD and reference groups. Design: Cross-sectional study. Setting: Patients were randomly selected from the archives of the Department of Pediatric Cardiology, Leiden...

Arbeidsparticipatie en werkgerelateerde handicaps bij jongvolwassenen met een aangeboren hartafwijking [Employment and work-related handicaps in young adults with congenital heart disease]

Objective. To evaluate employment, career problems and job-related handicaps in adults with complex or mild congenital heart disease (CHD). Design. Cross-sectional. Method. Data were obtained from 76 patients with complex and 80 with mild CHD who were known to the Department of Paediatric Cardiology at the Leiden University Medical Center, the...

Ouder worden met een aangeboren hartafwijking: Hoe is de kwaliteit van leven? [How is the quality of life in aging persons with a congenital heart disease?]

In adults (aged 17 to 32 years) with mild or complex previously operated congenital heart disease, health-related quality of life (measured with the TAAQOL) and subjective health status (measured with the SF-36) were compared with those of the general population. In addition, the relation between these measures and physical indices was...

A cardiac-specific health-related quality of life module for young adults with congenital heart disease: Development and validation

This study represents the development and validation of a cardiac-specific module of the generic health-related quality of life (HRQoL) instrument, the TAAQOL (TNO/AZL Adult Quality Of Life), for young adults with congenital heart disease (CHD). Items were selected based on literature, an explorative previous study in CHD patients, interviews...

Disease-related difficulties and satisfaction with level of knowledge in adults with mild or complex congenital heart disease

Objectives: To evaluate difficulties in daily life, and satisfaction with level of knowledge about their disease, in patients with congenital cardiac disease in order to improve counselling. Methods: A self-administered questionnaire was completed by 80 patients with mild, and 76 with complex, congenital cardiac disease. They were aged from 17...