Searched for: subject%3A%22Parents%2527%255C%2Bopinions%22
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Detmar, S. (author), Dijkstra, N. (author), Nijsingh, N. (author), Rijnders, M. (author), Verweij, M. (author), Hosli, E. (author), TNO Kwaliteit van Leven (author), KvL (author)
Background: Advances in genomics will open up opportunities in the fields of genetic testing, early diagnosis and disease treatment. While neonatal screening is the field of application par excellencefor these developments, the debate on its potential benefits and drawbacks is mainly theoretically driven and based on the opinions of...
article 2008
Detmar, S. (author), Hosli, E. (author), Dijkstra, N. (author), Nijsingh, N. (author), Rijnders, M. (author), Verweij, M. (author), TNO Kwaliteit van Leven (author)
Background: The current neonatal screening program ("the heel prick") involves taking a few drops of blood from almost every newborn in the Netherlands to determine whether the child is suffering from one of three congenital disorders: phenylketonuria, congenital hypothyroid, or adrenogenital syndrome. This study investigated the preferences and...
article 2007