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Stroek, K. (author), Visser, A. (author), van der Ploeg, C.P.B. (author), Zwaveling-Soonawala, N. (author), Heijboer, A.C. (author), Bosch, A.M. (author), van Trotsenburg, P. (author), Boelen, A. (author), Hoogendoorn, M. (author), de Jonge, R. (author)Objective. The Dutch Congenital hypothyroidism (CH) Newborn Screening (NBS) algorithm for thyroidal and central congenital hypothyroidism (CH-T and CH-C, respectively) is primarily based on determination of thyroxine (T4) concentrations in dried blood spots, followed by thyroid-stimulating hormone (TSH) and thyroxine-binding globulin (TBG)...article 2023
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Morgan, A.S. (author), Zeitlin, J. (author), Källén, K. (author), Draper, E.S. (author), Maršál, K. (author), Norman, M. (author), Serenius, F. (author), van Buuren, S. (author), Johnson, S. (author), Benhammou, V. (author), Pierrat, V. (author), Kaminski, M. (author), Foix L'Helias, L. (author), Ancel, P.Y. (author), Marlow, N. (author)Aim: We investigated the timing of survival differences and effects on morbidity for foetuses alive at maternal admission to hospital delivered at 22 to 26 weeks’ gestational age (GA). Methods: Data from the EXPRESS (Sweden, 2004–07), EPICure-2 (England, 2006) and EPIPAGE-2 (France, 2011) cohorts were harmonised. Survival, stratified by GA, was...article 2022
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van der Zee, R.B. (author), Uilenburg, N.N. (author), van der Ploeg, C.P.B. (author), Dirks, E. (author)Background: Few studies report prevalence rates of hearing loss in newborns for nationwide populations. The Dutch well-baby newborn hearing screening covers almost all eligible children and has high participation rates for follow-up screening rounds and diagnosis. This allows calculating reliable prevalence rates of permanent neonatal hearing...article 2022
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van Veenendaal, N.R. (author), Auxier, J.N. (author), van der Schoor, S.R.D. (author), Franck, L.S. (author), Stelwagen, M.A. (author), de Groof, F. (author), van Goudoever, J.B. (author), Eekhout, I.E. (author), de Vet, H.C.W. (author), Axelin, A. (author), van Kempen, A.A.M.W. (author)Background. Active parent participation in neonatal care and collaboration between parents and professionals during infant hospitalization in the neonatal intensive care unit (NICU) is beneficial for infants and their parents. A tool is needed to support parents and to study the effects and implementation of parent-partnered models of neonatal...article 2021
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Naafs, J.C. (author), Marchal, J.P. (author), Fliers, E. (author), Verkerk, P.H. (author), Luijten, M.A.J. (author), Boelen, A. (author), van Trotsenburg, A.S.P. (author), Zwaveling-Soonawala, N. (author)Context: Early treatment of primary congenital hypothyroidism (CH) prevents irreversible brain damage. Contrary to primary CH, outcome studies on central CH are scarce. Most patients with central CH have multiple pituitary hormone deficiencies (MPHD); these patients are also at risk for neonatal hypoglycemia. Objective: To assess cognitive and...article 2021
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Naafs, J.C. (author), Marchal, J.P. (author), Verkerk, P.H. (author), Fliers, E. (author), van Trotsenburg, A.S.P. (author), Zwaveling-Soonawala, N. (author)Context. Central congenital hypothyroidism (CH) requires lifelong medical treatment. The majority of children with central CH have multiple pituitary hormone deficiencies (MPHD), but in some cases central CH is isolated. Most pituitary hormone deficiencies are associated with impaired health-related quality of life (HRQoL). However, studies on...article 2021
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van Dijk, T. (author), Kater, A. (author), Jansen, M. (author), Dondorp, W.J. (author), Blom, M. (author), Kemp, S. (author), Langeveld, M. (author), Cornel, M.C. (author), van der Pal, S.M. (author), Henneman, L. (author)Neonatal bloodspot screening (NBS) aims to detect treatable disorders in newborns. The number of conditions included in the screening is expanding through technological and therapeutic developments, which can result in health gain for more newborns. NBS expansion, however, also poses healthcare, ethical and societal challenges. This qualitative...article 2021
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Stroek, K. (author), Heijboer, A.C. (author), Bouva, M.J. (author), van der Ploeg, C.P.B. (author), Heijnen, M.L.A. (author), Weijman, G. (author), Bosch, A.M. (author), de Jonge, R. (author), Schielen, P.C.J.I. (author), van Trotsenburg, A.S.P. (author), Boelen, A. (author)Objective: Congenital hypothyroidism (CH) is defined as thyroid hormone deficiency at birth due to disorders of the thyroid gland (thyroidal CH, CH-T), or the hypothalamus or pituitary (central CH, CH-C). The Dutch Newborn Screening (NBS) strategy is primarily based on determination of thyroxine (T4) concentrations in dried blood spots followed,...article 2020
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van Dommelen, P. (author), de Graaff-Korf, K. (author), Verkerk, P.H. (author), van Straaten, H.L.M. (author)Background. Literature shows that lower gestational age leads to greater delays in the auditory conduction, which suggests atypical maturation of the brainstem in normal‐hearing premature newborns. Our aim is to investigate if there is a difference between the extrauterine and intrauterine maturation of the auditory system in normal-hearing...article 2020
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van der Ploeg, C.P.B. (author), Wins, S. (author), Verkerk, P. (author)De monitor van de neonatale gehoorscreening (NGS) wordt jaarlijks opgesteld in opdracht van het RIVM Rijksinstituut voor Volksgezondheid en Milieu -CvB Centrum voor Bevolkingsonderzoek. De monitor beschrijft met kerncijfers hoe de NGS op landelijk en organisatieniveau is verlopen. De resultaten van de NGS en de diagnostiek in de Audiologische...report 2020
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Naafs, J.C. (author), Verkerk, P.H. (author), Fliers, E. (author), van Trotsenburg, A.S.P. (author), Zwaveling-Soonawala, N. (author)Objective To evaluate clinical characteristics of patients with central congenital hypothyroidism (CH), detected in the Dutch neonatal screening program. This included patients with isolated central CH but the majority have multiple pituitary hormone deficiencies (MPHD). Design Nationwide, cross-sectional study. Methods Data was collected on...article 2020
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van Ganzewinkel, C.J. (author), Niemarkt, H. (author), Andriessen, P. (author), van der Pal, S.M. (author), Kramer, B. (author)Background: Necrotizing enterocolitis (NEC) is a severe gastro-intestinal condition associated with prolonged, extreme visceral pain and recurrent procedural pain. Pain management in infants with NEC remains challenging. Pain symptoms range from being absent to not responding to analgesics. Cumulative neonatal pain is also associated with long...article 2019
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Uilenburg, N. (author), van der Ploeg, C.P.B. (author), van der Zee, R. (author), Meuwese-Jongejeugd, A. (author), van Zanten, B. (author)In the Netherlands, Youth Health Care services (YHC) have been carrying out neonatal hearing screening (NHS) in newborns since 2006. The aim of the NHS is to identify children with permanent hearing loss, so that intervention can be started before the age of 4 months. Early detection of hearing loss is important, as children who start...article 2018
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Breeman, L.D. (author), van der Pal, S. (author), Verrips, G.H.W. (author), Baumann, N. (author), Bartmann, P. (author), Wolke, D. (author)Purpose Although survival after very preterm birth (VP)/very low birth weight (VLBW) has improved, a significant number of VP/VLBW individuals develop physical and cognitive problems during their life course that may affect their health-related quality of life (HRQoL). We compared HRQoL in VP/VLBW cohorts from two countries: The Netherlands (n =...article 2017
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Siddiqui, A. (author), Cuttini, M. (author), Wood, R. (author), Velebil, P. (author), Delnord, M. (author), Zile, I. (author), Barros, H. (author), Gissler, M. (author), Hindori-Mohangoo, A.D. (author), Blondel, B. (author), Zeitlin, J. (author), Haidinger, G. (author), Alexander, S. (author), Pavlou, P. (author), Mortensen, L. (author), Sakkeus, L. (author), Lack, N. (author), Antsaklis, A. (author), Berbik, I. (author), Ólafsdóttir, H.S. (author), Bonham, S. (author), Misins, J. (author), Jaselioniene, J. (author), Wagener, Y. (author), Gatt, M. (author), Nijhuis, J. (author), Klungsøyr, K. (author), Szamotulska, K. (author), Horga, M. (author), Cap, J. (author), Mandić, N.T. (author), Bolúmar, F. (author), Gottvall, K. (author), Berrut, S. (author), Macfarlane, A. (author), Euro-Peristat Scientific Committee (author)Background: The Apgar score has been shown to be predictive of neonatal mortality in clinical and population studies, but has not been used for international comparisons. We examined population-level distributions in Apgar scores and associations with neonatal mortality in Europe. Methods: Aggregate data on the 5 minute Apgar score for live...article 2017
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- Goemans, B.F. (author), Noort, S. (author), Blink, M. (author), van Wouwe, K. (author), Kaspers, J.L. (author), de Haas, V. (author), Kollen, W.J.W. (author), van der Velden, V. (author), Gruber, T.A. (author), Zwaan, M. (author) conference paper 2017
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Jans, S.M.P.J. (author), Rijnders, M.E.B. (author)Early onset Group B- haemolytic streptococcus infection (EOGBS) is an important cause of neonatal morbidity and mortality within the first week of life. Maternal colonization rates during pregnancy are estimated to be around 20% in the Netherlands. Around half of the children born from these mothers will become colonized and 1% will develop...report 2017
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Zeitlin, J. (author), Mortensen, L. (author), Cuttini, M. (author), Lack, N. (author), Nijhauis, J. (author), Haidinger, G. (author), Blondel, B. (author), Hindori-Mohangoo, A.D. (author)Background Stillbirth and neonatal mortality rates declined in Europe between 2004 and 2010. We hypothesised that declines might be greater for countries with higher mortality in 2004 and disproportionally affect very preterm infants at highest risk. Methods Data about live births, stillbirths and neonatal deaths by gestational age (GA) were...article 2016
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van Dommelen, P. (author), Verkerk, P.H. (author), van Straaten, H.L. (author)Objective To gain insight into health and related costs associated with very preterm births, one needs accurate information about the prevalence of the disabling conditions, including neonatal hearing loss (NHL). Study design We assessed the prevalence of NHL by week of gestation and categories of birth weight in very preterm neonates. Results...article 2015
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Zwaveling-Soonawala, N. (author), Trotsenburg, A.S. (author), Verkerk, P.H. (author)Congenital hypothyroidism (CH) may be of thyroidal (CHT) or central origin (CHC). Worldwide, most neonatal screening programs are TSH based and effectively detect CHT. Only a few screening programs measure total or free T4 and TSH simultaneously or stepwise, enabling detection of CHT as well as CHC. A frequently used argument against screening...article 2015