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van der Ploeg, C.P.B. (author), van den Akker-van Marle, M.E. (author), Vernooij-van Langen, A.M.M. (author), Elvers, L.H. (author), Gille, J.J.P. (author), Verkerk, P.H. (author), Dankert-Roelse, J.E. (author), Loeber, J.G. (author), Triepels, R.H. (author), van der Pal, S.M. (author), Dompeling, E. (author), Pals, G. (author), Gulmans, V.A.M. (author), Oey-Spauwen, M.J.W. (author), Wijnands, Y.H.H.M. (author), Castricum, L.M. (author), Arets, H.G.M. (author), van der Ent, C.K. (author), Tiddens, H.A.W.M. (author), de Rijke, Y.B. (author), Yntema, J.B. (author)BACKGROUND: Previous cost-effectiveness studies using data from the literature showed that newborn screening for cystic fibrosis (NBSCF) is a good economic option with positive health effects and longer survival. METHODS: We used primary data to compare cost-effectiveness of four screening strategies for NBSCF, i.e. immunoreactive trypsinogen...article 2015
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Vernooij-van Langen, A.M.M. (author), van der Pal, S.M. (author), Reijntjens, A.J.T. (author), Loeber, J.G. (author), Dompeling, E. (author), Dankert-Roelse, J.E. (author)Background: False-positive screening results in newborn screening for cystic fibrosis may lead to parental stress, family relationship problems and a changed perception of the child's health. Aim of the study: To evaluate whether parental anxiety induced by a false positive screening result disappears after six months and to assess whether a...article 2014
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- Vernooij-van Langen, A.M.M. (author), Reijntjes, S. (author), van der Pal, S.M. (author), Loeber, G.J. (author), Dompeling, E. (author), Dankert-Roelse, J.E. (author) article 2013
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Vernooij-van Langen, A.M.M. (author), Reijntjens, S. (author), van der Pal, S.M. (author), Loeber, J.G. (author), Dompeling, E. (author), Dankert-Roelse, J.E. (author)Purpose: Most newborn screening (NBS) strategies for Cystic Fibrosis (CF) also identify carriers. However, it is unclear if parents want to be informed about their child's carrier status or not. Methods: Focus group discussions with pregnant couples to explore their opinions about disclosure of a carrier result for CF of their newborn. Results:...article 2013
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Vernooij-Van Langen, A.M.M. (author), Loeber, J.G. (author), Elvers, B. (author), Triepels, R.H. (author), Gille, J.J.P. (author), van der Ploeg, C.P.B. (author), Reijntjens, S. (author), Dompeling, E. (author), Dankert-Roelse, J.E. (author)Context: Newborn screening for cystic fibrosis (CF) is included in many routine programmes but current strategies have considerable drawbacks, such as false-positive tests, equivocal diagnosis and detection of carriers. Objective: To assess the test performance of two newborn screening strategies for CF. Design, setting and participants: In 2008...article 2012
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- Vernooij-Van Langen, A.M.M. (author), Loeber, J.G. (author), van der Ploeg, C.P.B. (author), Dompeling, E. (author), Dankert-Roelse, J.E. (author) article 2012
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- Vernooij-van Langen, A.M.M. (author), Reijntjens, S. (author), van der Pal, S.M. (author), Loeber, J.G. (author), Dompeling, E. (author), Dankert-Roelse, J.E. (author) article 2011
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Vernooij-van Langen, A.M.M. (author), Loeber, J.G. (author), Elvers, L.H. (author), Triepels, R.H. (author), Gille, J.J.P. (author), van der Ploeg, C.P.B. (author), Reijntjes, A.J.T. (author), Dompeling, E. (author), Dankert-Roelse, J.E. (author), TNO Kwaliteit van Leven (author)Abstract of the 32nd European Cystic Fibrosis Conference.article 2009
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- Dankert-Roelse, J.E. (author), Vernooij-van Langen, A.M.M. (author), Loeber, J.G. (author), Elvers, L.H. (author), Triepels, R.H. (author), Gille, J.J.P. (author), Pals, G. (author), van den Akker-van Marle, M.E. (author), van der Ploeg, C.P.B. (author), van der Pal, S.M. (author), Gulmans, V.A.M. (author), Oey-Spauwen, M.J.W. (author), Wijnands, Y.H.H.M. (author), Bosch, M. (author), Dompeling, E. (author), Reijntjes, A.J.T. (author), TNO Kwaliteit van Leven (author) book 2009