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document: Health-Related Quality-of-Life Outcomes of Very Preterm or Very Low Birth Weight Adults: Evidence From an Individual Participant Data Meta-Analysis Key Points for decision makers
Bolbocean, C. (author), van der Pal, S. (author), van Buuren, S. (author), Anderson, P.J. (author), Bartmann, P. (author), Baumann, N. (author), Cheong, J.L.Y. (author), Darlow, B.A. (author), Doyle, L.W. (author), Evensen, K.A.I. (author), Horwood, J. (author), Indredavik, M.S. (author), Johnson, S. (author), Marlow, N. (author), Mendonça, M. (author), Ni, Y. (author), Wolke, D. (author), Woodward, L. (author), Verrips, E. (author), Petrou, S. (author)
Background and Objective. Assessment of health-related quality of life for individuals born very preterm and/or low birthweight (VP/VLBW) offers valuable complementary information alongside biomedical assessments. However, the impact of VP/VLBW status on health-related quality of life in adulthood is inconclusive. The objective of this study was...
article 2023

document: Increased interaction and procedural flexibility favoured participation: Study across European cohorts of preterm born individuals
Marques, S.C.S. (author), Doetsch, J.N. (author), Teixeira, R. (author), Abate, G. (author), Brødsgaard, A. (author), Brubakk, A.M. (author), Colombo, G. (author), Cuttini, M. (author), Evensen, K.A.I. (author), Hennissen, V. (author), Indredavik, M.S. (author), Kajantie, E. (author), Lebeer, J. (author), van der Pal, S. (author), Pedersen, P. (author), Sarrechia, I. (author), Virtanen, E. (author), Barros, H. (author), RECAP Preterm-WP6 QS Work Group, (author)
Objective To understand participation and attrition phenomena variability in European cohorts of individuals born preterm through in-depth exploration of the interplay of situational elements involved. Study Design and Setting Multi-situated qualitative design, using focus groups, semi-structured interviews and collaborative visual methodology...
article 2022

document: Common Core Assessments in follow-up studies of adults born preterm—Recommendation of the Adults Born Preterm International Collaboration
Kajantie, E. (author), Johnson, S. (author), Heinonen, K. (author), Anderson, P.J. (author), Wolke, D. (author), Eversen, K.A.I. (author), Räikkönen, K. (author), Darlo, B.A. (author), van der Pal, S. (author), Indredavik, M.S. (author), Jaekel, J. (author), Hovi, P. (author), Morrison, K. (author), Verrips, E. (author), Doyle, L.W. (author)
Background. Of all newborns, 1%‐2% are born very preterm (VP;
article 2021