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Rajmil, L. (author), Abad, S. (author), Sardon, O. (author), Morera, G. (author), Pérez-Yarza, E.G. (author), Moreno, A. (author), Detmar, S. (author), Fekkes, M. (author), Herdman, M. (author), Alonso, J. (author)Objectives: To evaluate the reliability, and construct validity of the Spanish version of the TNO-AZL preschool children quality of life (TAPQOL). Methods: A consecutive sample of children (3 months to 5 years old) was recruited from primary care centers and two teaching hospitals in Spain. The TAPQOL and a set of questions related to their...article 2011
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- TNO Kwaliteit van Leven (author), van der Pal, S. (author), Detmar, S. (author) report 2010
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- TNO Kwaliteit van Leven (author), van der Pal, S. (author), Detmar, S. (author) report 2010
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van der Pal, S. (author), Otten, W. (author), Detmar, S. (author)De hielprik is per januari 2007 uitgebreid van drie naar zeventien ziektes. Tevens kunnen ouders kiezen of zij een dragerschapuitslag op sikkelcelziekte willen ontvangen. Via vragenlijstonderzoek is nagegaan in hoeverre ouders een geïnformeerde beslissing nemen over deelname aan de hielprikscreening en over het ontvangen van een...article 2010
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TNO Kwaliteit van Leven (author), Korfker, D. (author), Detmar, S. (author), Buitendijk, S. (author)The Steering Committee Pregnancy and Birth that was created by the Minister of Health and Welfare to study the relatively high perinatal mortality in the Netherlands, advises that extra attention be paid to pregnant women in disadvantaged neighborhoods. The perinatal mortality is substantially higher in these neighborhoods and is the highest...article 2010
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- Korfker, D. (author), Rijnders, M. (author), Detmar, S. (author), TNO Kwaliteit van Leven (author) report 2009
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Berra, S. (author), Tebé, C. (author), Erhart, M. (author), Ravens-Sieberer, U. (author), Auquier, P. (author), Detmar, S. (author), Herdman, M. (author), Alonso, J. (author), Rajmil, L. (author), TNO Kwaliteit van Leven (author)Objective: To examine the association between use of health care services and health status, sociodemographic, and health care system characteristics in children and adolescents from 11 European countries. Research Design: Cross-sectional surveys in representative samples included using phone or school-based sampling. Subjects: Children and...article 2009
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- Korfker, D. (author), Rijnders, M. (author), Detmar, S. (author), TNO Kwaliteit van Leven (author) report 2009
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Fleuren, M. (author), Keijsers, J. (author), Buitendijk, S. (author), Detmar, S. (author), TNO Kwaliteit van Leven (author)Doorgaan met het ontwikkelen en vervolmaken van richtlijnen heeft weinig zin als ze niet gebruikt worden. Gebruik financiering daarom voor invoeringsactiviteiten en evaluatie. Beter één richtlijn goed gebruikt, dan tien op de plank.article 2009
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- TNO Kwaliteit van Leven (author), van der Pal, S. (author), van Kesteren, N. (author), van Dommelen, P. (author), Detmar, S. (author) report 2009
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Sardón Prado, O. (author), Morera, G. (author), Herdman, M. (author), Moreno Galdó, A. (author), Pérez-Yarza, E.G. (author), Detmar, S. (author), Fekkes, M. (author), Rajmil, L. (author), TNO Kwaliteit van Leven (author)Objectives: To obtain a Spanish version of the TNO-AZL Preschool Children Quality of Life Questionnaire (TAPQOL) that would be both semantically and culturally equivalent to the original. Material and methods: The TAPQOL questionnaire was designed to measure health-related quality of life in children aged 3 months to 5 years and contains 43...article 2008
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Detmar, S. (author), Dijkstra, N. (author), Nijsingh, N. (author), Rijnders, M. (author), Verweij, M. (author), Hosli, E. (author), TNO Kwaliteit van Leven (author), KvL (author)Background: Advances in genomics will open up opportunities in the fields of genetic testing, early diagnosis and disease treatment. While neonatal screening is the field of application par excellencefor these developments, the debate on its potential benefits and drawbacks is mainly theoretically driven and based on the opinions of...article 2008
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van Dommelen, P. (author), Schuller, A. (author), Detmar, S. (author), van den Berg, B. (author), Groothuis-Oudshoorn, K. (author), TNO Kwaliteit van Leven (author)Objective: To establish a model that estimates a preference-based measure (valuation) of social participation for children between 8 and 18 years of age from the Handicap Scale for Children (HSC), a validated questionnaire for children with a chronic illness. Methods: Vignettes of the HSC classification system were valued by a representative...article 2008
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Ravens-Sieberer, U. (author), Gosch, A. (author), Rajmil, L. (author), Erhart, M. (author), Bruil, J. (author), Power, M. (author), Duer, W. (author), Auquier, P. (author), Cloetta, B. (author), Czemy, L. (author), Mazur, J. (author), Czimbalmos, A. (author), Tountas, Y. (author), Hagquist, C. (author), Kilroe, J. (author), Fuerth, K. (author), Simeoni, M.-C. (author), Robitail, S. (author), Nickel, J. (author), Kurth, B.M. (author), von Rüden, U. (author), Dimitrakakis, C. (author), Aszman, A. (author), Keenaghan, C. (author), Detmar, S. (author), Veripps, E. (author), Mierzejeswka, E. (author), Berra, S. (author), Tebé, C. (author), Herdman, M. (author), Alonso, J. (author), Abel, T. (author), Bisegger, C. (author), Farley, C. (author), Atherton, C. (author), Phillips, K. (author), TNO Kwaliteit van Leven (author)Objective: This study assesses the reliability and validity of the European KIDSCREEN-52 generic health-related quality of life (HRQoL) questionnaire for children and adolescents. Research Design: The KIDSCREEN-52, which measures HRQoL in 10 dimensions, was administered to a representative sample of 22,827 children and adolescents (8 to 18 years...article 2008
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TNO Kwaliteit van Leven (author), Schonbeck, Y. (author), van den Akker, E. (author), Otten, W. (author), Detmar, S. (author)Sinds 2005 komen alle zwangere vrouwen, al dan niet op eigen kosten, in aanmerking voor prenatale screening naar Downsyndroom[5]. Prenatale screening naar Downsyndroom wordt in Nederland vrijwel altijd uit- gevoerd met de combinatietest tussen 9 en 14 weken zwangerschap. Verloskundig hulpverleners hebben de taak gekregen vrouwen te informeren...article 2008
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TNO Kwaliteit van Leven (author), Korfker, D. (author), van der Pal-de Bruin, K. (author), Detmar, S. (author), Buitendijk, S. (author)Dit rapport beschrijft een kwalitatieve inventarisatie van knelpunten bij de behandeling van Turkse en Marokkaanse paren met vruchtbaarheidsproblemen. Ter vergelijking zijn ook Nederlandse paren onder behandeling voor vruchtbaarheidsproblemen geïnterviewd. De vraagstelling was welke knelpunten er zijn en of de knelpunten van allochtone groepen...report 2008
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- TNO Kwaliteit van Leven (author), van der Pal, S. (author), Detmar, S. (author) report 2008
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Hosli, E. (author), Detmar, S. (author), Raat, H. (author), Bruil, J. (author), Vogels, T. (author), Verrips, E. (author), TNO Kwaliteit van Leven (author)The Child Health Questionnaire (CHQ)-87-item child and adolescent self-report (CF87) is an increasingly used health-related quality-of-life instrument for measuring the self-perceived physical and psychosocial well-being of children aged 10 years and older. The aims of this study were to evaluate structure, reliability and validity of the Dutch...article 2007
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Ravens-Sieberer, U. (author), Auquier, P. (author), Erhart, M. (author), Gosch, A. (author), Rajmil, L. (author), Bruil, J. (author), Power, M. (author), Duer, W. (author), Cloetta, B. (author), Czemy, L. (author), Mazur, J. (author), Czimbalmos, A. (author), Tountas, Y. (author), Hagquist, C. (author), Kilroe, J. (author), Fuerth, K. (author), Czerny, L. (author), Simeoni, M.C. (author), Robitail, S. (author), Nickel, J. (author), Kurth, B.-M. (author), von Rüden, U. (author), Dimitrakakis, C. (author), Aszman, A. (author), Flannery, E. (author), Detmar, S. (author), Veripps, E. (author), Mierzejeswka, E. (author), Berra, S. (author), Tebé, C. (author), Herdman, M. (author), Alonso, J. (author), Abel, T. (author), Bisegger, C. (author), Farley, C. (author), Atherton, C. (author), Phillips, K. (author), TNO Kwaliteit van Leven (author)Objective: To assess the construct and criterion validity of the KIDSCREEN-27 health-related quality of life (HRQoL) questionnaire, a shorter version of the KIDSCREEN-52. Methods: The five-dimensional KIDSCREEN-27 was tested in a sample of 22,827. For criterion validity the correlation with and the percentage explained variance of the scores of...article 2007
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Detmar, S. (author), Hosli, E. (author), Dijkstra, N. (author), Nijsingh, N. (author), Rijnders, M. (author), Verweij, M. (author), TNO Kwaliteit van Leven (author)Background: The current neonatal screening program ("the heel prick") involves taking a few drops of blood from almost every newborn in the Netherlands to determine whether the child is suffering from one of three congenital disorders: phenylketonuria, congenital hypothyroid, or adrenogenital syndrome. This study investigated the preferences and...article 2007