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den Ouden, A.L. (author), Hirasing, R.A. (author), Buitendijk, S.E. (author), de Jong-van de Berg, L.T.W. (author), de Walle, H.E.K. (author), Cornel, M.C. (author), TNO Preventie en Gezondheid (author)
Objective. To determine the live birth prevalence of neural tube defects (NTD) in the Netherlands and describe the clinical picture. Design. Descriptive. Setting. TNO Prevention and Health, Leiden, the Netherlands. Method. Data collected through active surveillance of NTD on a monthly basis by paediatricians throughout the country. Results. From...
article 1996
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den Ouden, A.L. (author), Kok, J.H. (author), Verkerk, P.H. (author), Brand, R. (author), Verloove-Vanhorick, S.P. (author), TNO Preventie en Gezondheid (author)
Transient neonatal hypothyroxinemia is very common in preterm infants. The literature on the effect of this hypothyroxinemia is, however, controversial, and large or long-term follow-up studies are not available. In a nationwide prospective follow-up study on very preterm and (or) very low birth weight infants (n = 717), we studied the...
article 1996
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Brugman, E. (author), van der Pal-de Bruin, K.M. (author), den Ouden, A.L. (author), Drenthen, A.J.M. (author), Buitendijk, S.E. (author), TNO Preventie en Gezondheid (author)
Objective. To establish to what extent general practitioners (GP's) are familiar with the folic acid campaign of the Netherlands Bureau for Food and Nutrition Education, display a positive attitude regarding use of folic acid tablets by women who would like to become pregnant and factually provide information on folic acid. Design. Cross...
article 1997
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van Velzen-Mol, H.W.M. (author), Burgmeijer, R.J.F. (author), Hofkamp, M. (author), den Ouden, A.L. (author), van Everdingen, J.J.E. (author), TNO Preventie en Gezondheid (author)
The sudden and unforeseen death of a child in the first two years, usually happening during a sleeping period, is known as cot death. As cot death is a very tragic and dramatic experience for the family, it is important to reduce its incidence. In the period between 1972 and 1987, the number of cot deaths initially increased, but during the last...
article 1997
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Schaap, A.H.P. (author), Wolf, H. (author), Bruinse, H.W. (author), den Ouden, A.L. (author), Smolders-de Haas, H. (author), van Ertbruggen, I. (author), Treffers, P.E. (author), TNO Preventie en Gezondheid (author)
Aim - To describe the long term outcome of extremely preterm growth retarded infants in relation to obstetric management and various perinatal events. Methods - A cohort study was undertaken in two tertiary care centres with different obstetric management. All infants with fetal growth retardation due to placental insufficiency and resulting in...
article 1997
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den Ouden, A.L. (author), TNO Preventie en Gezondheid (author)
Objective. Survey of changes in the number of preterm and very low birth weight infants in the Netherlands in ten years. Design. Descriptive. Setting. TNO Preventie en Gezondheid, sector Jeugd, Leiden, the Netherlands. Method. All infants with a gestational age less than 32 weeks and (or) a birth weight less than 1500 g from the National...
article 1998
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Kollée, L.A.A. (author), den Ouden, A.L. (author), Drewes, J.G. (author), Brouwers, H.A.A. (author), Verwey, R.A. (author), Verloove-Vanhorick, S.P. (author), TNO Preventie en Gezondheid (author)
Objective. To determine changes in referral of preterm newborns. Design. Descriptive. Setting. Foundation for Perinatal Epidemiology the Netherlands, Leiden. Methods. Data regarding hospital of birth, referral, need of intensive care and mortality of the infants < 32 weeks and (or) < 1500 g birth weight born in 1993 from the National Neonatology...
article 1998
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den Ouden, A.L. (author), Haerkens, H.M.J. (author), Drejer, G.F. (author), Drewes, J.G. (author), Mourad-Baars, P.E.C. (author), Oudesluys-Murphy, A.M. (author), TNO Preventie en Gezondheid (author)
Objective. To determine whether incubator home care is desirable and feasible. Design. Inventory. Setting. Four neonatal units representative of the type of care in general hospitals in the Netherlands. Method. The relevant data on all infants with a birth weight ≤ 2000 g admitted in the last 3 months of 1996 to one of four hospitals were...
article 1998
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Dorrepaal, C.A. (author), den Ouden, A.L. (author), Cornel, M.C. (author), TNO Preventie en Gezondheid (author)
Objective. To determine if the birth prevalence data on congenital malformations in the national perinatal registries, the Landelijke Verloskunde Registratie (LVR) (National Obstetrical Registry) and the Landelijke Neonatologie Registratie (LNR) (National Neonatological Registry), can be combined into one nationwide database, and if so to...
article 1998
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den Ouden, A.L. (author), Drijkoningen, C.E.M. (author), van der Spee-Wekke, J. (author), de Sigmond-Bruin, E.M. (author), Verloove-Vanhorick, S.P. (author), TNO Preventie en Gezondheid (author)
Objective. To determine health and disabilities of preterm infants at age 10. Design. Prospective follow-up study. Setting. TNO Preventie en Gezondheid, sector Jeugd, Leiden, the Netherlands. Method. A questionnaire on medical consumption and physical disabilities was sent to the parents of a Dutch cohort of infants born alive in 1983 with a...
article 1998
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van der Pal-de Bruin, K.M. (author), Buitendijk, S.E. (author), Hirasing, R.A. (author), den Ouden, A.L. (author), TNO Preventie en Gezondheid (author)
Objective. To describe the incidence and the expected clinical picture of neural tube defects (NTD) in years when periconceptional folic acid use increased. Design. Descriptive. Method. Data on the prevalence of NTD in the Netherlands in 1994-1998 and on the prognosis at the time of the report obtained from the Nederlands Signalerings Centrum...
article 2000
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Walther, F.J. (author), den Ouden, A.L. (author), Verloove-Vanhorick, S.P. (author)
In 1983, Dutch pediatricians collaborated on a national level and collected perinatal data on 1338 liveborn infants with a gestational age <32 weeks and/or a birthweight <1500 g (project on preterm and small for gestational age infants, POPS). Their outcome was assessed at 2 years of age by their pediatricians, at 5 years by a team of...
article 2000
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Verrips, G.H.W. (author), Vogels, A.G.C. (author), den Ouden, A.L. (author), Paneth, N. (author), Verloove-Vanhorick, S.P. (author), TNO Preventie en Gezondheid (author)
The aim of this study was to evaluate the agreement between children and proxies as well as the agreement between methods of administration in assessing Health-Related Quality of Life (HRQoL) using the TNO AZL Children's Quality Of Life (TACQOL) questionnaire. A random sample from a Dutch cohort of 14-year-old very low birth weight children and...
article 2000
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Spee-Van Der Wekke, J. (author), den Ouden, A.L. (author), Meulmeester, J.F. (author), Radder, J.J. (author)
Purpose: To assess the prevalence of self-reported physical disabilities in school children, through the Child Health Monitoring System. Methods: In 1992/1993, data were obtained in mainstream education (n = 5484), and in 1994/1995 in special education (n = 2622). The data were weighted to calculate estimates representative of the Dutch...
article 2000
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Verrips, G.H.W. (author), Stuifbergen, M.C. (author), den Ouden, A.L. (author), Bonsel, G.J. (author), Gemke, R.J.B.J. (author), Paneth, N. (author), Verloove-Vanhorick, S.P. (author)
The aim of this study was to evaluate interrater and intermodality agreement in assessing health status using the Health Utilities Index. A random sample from a Dutch cohort of 14-year-old Very Low Birth Weight children and their parents were invited to participate in a face-to-face (n = 150) or telephone (n = 150) interview. All 300...
article 2001
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Hille, E.T.M. (author), den Ouden, A.L. (author), Saigal, S. (author), Wolke, D. (author), Lambert, M. (author), Whitaker, A. (author), Pinto-Martin, J.A. (author), Hoult, L. (author), Meyer, R. (author), Feldman, J.F. (author), Verloove-Vanhorick, S.P. (author), Paneth, N. (author)
Background: The increased survival chances of extremely low-birthweight (ELBW) infants (weighing ≤1000 g at birth) has led to concern about their behavioural outcome in childhood. In reports from several countries with different assessments at various ages, investigators have noted a higher frequency of behavioural problems in such infants, but...
article 2001
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Paneth, N. (author), Qiu, H. (author), Rosenbaum, P. (author), Saigal, S. (author), Bishai, S. (author), Jetton, J. (author), den Ouden, L. (author), Broyles, S. (author), Tyson, J. (author), Kugler, K. (author)
The reliability of classification of cerebral palsy (CP) in low-birthweight children was assessed by using clinical and research study records sampled from population-based cohort studies in the USA, the Netherlands, Canada, and Germany. Records of neurological examination findings and functional motor assessments were submitted to up to five...
article 2003
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de Kleine, M.J.K. (author), den Ouden, A.L. (author), Kollée, L.A.A. (author), van der Nijhuis - Sanden, M.W.G. (author), Sondaar, M. (author), Kessel van - Feddema, B.J.M. (author), Knuijt, S. (author), van Baar, A.L. (author), Ilsen, A. (author), Breur-Pieterse, R. (author), Briët, J.M. (author), Brand, R. (author), Verloove-Vanhorick, S.P. (author)
Background: Long term follow up shows a high frequency of developmental disturbances in preterm survivors of neonatal intensive care formerly considered non-disabled. Aims: To develop and validate an assessment tool that can help paediatricians to identify before 6 years of age which survivors have developmental disturbances that may interfere...
article 2003
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Saigal, S. (author), den Ouden, L. (author), Wolke, D. (author), Hoult, L. (author), Paneth, N. (author), Streiner, D.L. (author), Whitaker, A. (author), Pinto-Martin, J. (author)
Objective. The aim of this study was to determine whether leaming and school problems in extremely low birth weight (ELBW) and reference children differ between cohorts in different countries. Methods. Participants were 4 international population-based cohorts of ELBW survivors who were 500 to 1000 g birth weight from New Jersey, central-west...
article 2003
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van der Pal-de Bruin, K.M. (author), van der Heijden, P.G.M. (author), Buitendijk, S.E. (author), den Ouden, A.L. (author), TNO Preventie en Gezondheid (author)
Objective: To study the effect of increased folic acid intake on the prevalence of neural tube defects (NTD) in The Netherlands. Study design: Using the capture-recapture method, the prevalence of NTD was estimated on the basis of five different registries on births affected by NTD. Results: Total prevalence over the 1988-1998 period varied...
article 2003
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