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Kamphuis, M. (author), Zwinderman, K.A.H. (author), Vogels, T. (author), Vliegen, H.W. (author), Kamphuis, R.P. (author), Ottenkamp, J. (author), Verloove-Vanhorick, S.P. (author), Bruil, J. (author), TNO Preventie en Gezondheid (author)
This study represents the development and validation of a cardiac-specific module of the generic health-related quality of life (HRQoL) instrument, the TAAQOL (TNO/AZL Adult Quality Of Life), for young adults with congenital heart disease (CHD). Items were selected based on literature, an explorative previous study in CHD patients, interviews...
article 2004
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Kamphuis, M. (author), Vliegen, H.W. (author), Vogels, T. (author), Zwinderman, K.H. (author), van der Wall, E.E. (author), Verloove-Vanhorick, S.P. (author), Ottenkamp, J. (author), TNO Preventie en Gezondheid (author)
Objective: To discuss the need for continuing cardiac surveillance in adults with hemodynamically insignificant congenital cardiac disease. Methods: In 82 patients with mild congenital cardiac malformations, aged from 17 to 32 years, we investigated the subjective health status, the health-related quality of life, any difficulties encountered in...
article 2002
document
Fekkes, M. (author), Kamphuis, R.P. (author), Ottenkamp, J. (author), Verrips, E. (author), Vogels, T. (author), Kamphuis, M. (author), Verloove-Vanhorick, S.P. (author), TNO Preventie en Gezondheid (author)
The present study examined the social impediments experienced by young adults with minor congenital heart disease (CHD) and compared the health status and health-related quality of life of these CHD-patients with a matched group (age, sex) from the general population. Young adults with minor CHD, not in need of surgical correction, were sent a...
article 2001