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document
Fekkes, M. (author), Kamphuis, R.P. (author), Ottenkamp, J. (author), Verrips, E. (author), Vogels, T. (author), Kamphuis, M. (author), Verloove-Vanhorick, S.P. (author), TNO Preventie en Gezondheid (author)
The present study examined the social impediments experienced by young adults with minor congenital heart disease (CHD) and compared the health status and health-related quality of life of these CHD-patients with a matched group (age, sex) from the general population. Young adults with minor CHD, not in need of surgical correction, were sent a...
article 2001
document
Kamphuis, M. (author), Vliegen, H.W. (author), Vogels, T. (author), Zwinderman, K.H. (author), van der Wall, E.E. (author), Verloove-Vanhorick, S.P. (author), Ottenkamp, J. (author), TNO Preventie en Gezondheid (author)
Objective: To discuss the need for continuing cardiac surveillance in adults with hemodynamically insignificant congenital cardiac disease. Methods: In 82 patients with mild congenital cardiac malformations, aged from 17 to 32 years, we investigated the subjective health status, the health-related quality of life, any difficulties encountered in...
article 2002
document
Kamphuis, M. (author), Vogels, T. (author), Ottenkamp, J. (author), van der Wall, E.E. (author), Verloove-Vanhorick, S.P. (author), Vliegen, H.W. (author)
Objective: To evaluate job participation, careerrelated problems, and actual job problems in adults with complex congenital heart disease (CHD) compared with adults with mild CHD and reference groups. Design: Cross-sectional study. Setting: Patients were randomly selected from the archives of the Department of Pediatric Cardiology, Leiden...
article 2002
document
Kamphuis, M. (author), Ottenkamp, J. (author), Vliegen, H.W. (author), Vogels, T. (author), Zwinderman, K>H. (author), Kamphuis, R.P. (author), Verloove-Vanhorick, S.P. (author), TNO Preventie en Gezondheid (author)
OBJECTIVE: To examine the impact of previously operated complex congenital heart disease on health related quality of life and subjective health status and to determine the relation between these parameters and physical status. DESIGN: Cross sectional; information on medical follow up was sought retrospectively. SETTING: Patients were randomly...
article 2002
document
Kamphuis, M. (author), Verloove-Vanhorick, S.P. (author), Vogels, T. (author), Ottenkamp, J. (author), Vliegen, H.W. (author), TNO Preventie en Gezondheid (author)
Objectives: To evaluate difficulties in daily life, and satisfaction with level of knowledge about their disease, in patients with congenital cardiac disease in order to improve counselling. Methods: A self-administered questionnaire was completed by 80 patients with mild, and 76 with complex, congenital cardiac disease. They were aged from 17...
article 2002
document
Kamphuis, M. (author), Verloove-Vanhorick, S.P. (author), Vliegen, H.W. (author), Ottenkamp, J. (author)
In adults (aged 17 to 32 years) with mild or complex previously operated congenital heart disease, health-related quality of life (measured with the TAAQOL) and subjective health status (measured with the SF-36) were compared with those of the general population. In addition, the relation between these measures and physical indices was...
article 2003
document
Kamphuis, M. (author), Zwinderman, K.A.H. (author), Vogels, T. (author), Vliegen, H.W. (author), Kamphuis, R.P. (author), Ottenkamp, J. (author), Verloove-Vanhorick, S.P. (author), Bruil, J. (author), TNO Preventie en Gezondheid (author)
This study represents the development and validation of a cardiac-specific module of the generic health-related quality of life (HRQoL) instrument, the TAAQOL (TNO/AZL Adult Quality Of Life), for young adults with congenital heart disease (CHD). Items were selected based on literature, an explorative previous study in CHD patients, interviews...
article 2004
document
Kamphuis, M. (author), Vliegen, H.W. (author), Verloove-Vanhorick, S.P. (author), Ottenkamp, J. (author), Vogels, T. (author)
Objective. To evaluate employment, career problems and job-related handicaps in adults with complex or mild congenital heart disease (CHD). Design. Cross-sectional. Method. Data were obtained from 76 patients with complex and 80 with mild CHD who were known to the Department of Paediatric Cardiology at the Leiden University Medical Center, the...
article 2005
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