Print Email Facebook Twitter The need for cardiac follow-up in adults with mild congenital cardiac disease Title The need for cardiac follow-up in adults with mild congenital cardiac disease Author Kamphuis, M. Vliegen, H.W. Vogels, T. Zwinderman, K.H. van der Wall, E.E. Verloove-Vanhorick, S.P. Ottenkamp, J. TNO Preventie en Gezondheid Publication year 2002 Abstract Objective: To discuss the need for continuing cardiac surveillance in adults with hemodynamically insignificant congenital cardiac disease. Methods: In 82 patients with mild congenital cardiac malformations, aged from 17 to 32 years, we investigated the subjective health status, the health-related quality of life, any difficulties encountered in daily life, the regularity of follow-up, current diagnosis, and antibiotic prophylaxis. Results: The subjective health status, and the health-related quality of life, did not differ from those of the general population. Nevertheless, patients experienced unnecessary difficulties with choice of sport, obtaining insurance cover, and education. After clinical re-evaluation, diagnosis and antibiotic regimes had to be changed in 9 patients (11%). Conclusions: Patients with a mild congenital cardiac malformation consider themselves to be in good health. So as to fine tune the diagnosis, and update the information supplied to the patients, we suggest that at least a cardiological assessment be carried out at the age of 16 to 18 years. In this way, patients might be protected from unnecessary difficulties, such as restrictions for sport or the charging of unjustifiably high rates for insurance. © Greenwich Medical Media Ltd. Subject HealthGrown-up congenital heart diseaseHealth-related quality of lifeHeart defectAntibiotic agentCongenital heart diseaseControlled studyDaily life activityEducationFollow upHealth insuranceHealth statusHemodynamic monitoringCongenital heart malformationEchocardiographyPathophysiologyPsychological aspectActivities of Daily LivingAdolescentAdultEchocardiographyFemaleFollow-Up StudiesHealth StatusHeart Defects, CongenitalHumansMaleQuality of LifeQuestionnaires To reference this document use: http://resolver.tudelft.nl/uuid:ef720f88-2082-403f-955d-ea5a9c5c06cf DOI https://doi.org/10.1017/s1047951102000811 TNO identifier 236719 ISSN 1047-9511 Source Cardiology in the Young, 12 (5), 474-478 Document type article Files To receive the publication files, please send an e-mail request to TNO Library.