Title
Burden of informal caregiving for stroke patients: Identification of caregivers at risk of adverse health effects
Author
van Exel, N.J.A.
Koopmanschap, M.A.
van den Berg, B.
Brouwer, W.B.F.
van den Bos, G.A.M.
TNO Preventie en Gezondheid
Publication year
2005
Abstract
Background: We assessed the objective and subjective burden of caregiving for stroke patients and investigated which characteristics of the patient, the informal caregiver and the objective burden contribute most to subjective burden and to the condition of feeling substantially burdened. Methods: We studied a sample of 151 stroke survivors and their primary informal caregivers. We collected data through patient and caregiver interviews 6 months after stroke. Results: Both the level of subjective burden and the condition of feeling substantially burdened were associated with both caregiver's and patient's health-related quality of life, patient's age, and the number of caregiving tasks performed. Conclusions: These conditions can be used in clinical practice to identify potentially vulnerable caregivers in need of support and at risk of adverse health effects. Monitoring stroke survivors as well as their family caregivers at discharge may help to prevent or alleviate caregiver burden. Copyright © 2005 S. Karger AG, Basel.
Subject
Health
Caregiver strain index
Informal caregivers
Objective burden
Self-rated burden
Stroke
Subjective burden
Clinical practice
Controlled study
Family
Health hazard
Hospital discharge
Interview
Patient monitoring
Sample
Stroke
Task performance
Adaptation, Psychological
Adult
Aged
Aged, 80 and over
Caregivers
Cerebrovascular Accident
Cost of Illness
Family Health
Female
Humans
Male
Middle Aged
Quality of Life
Risk Factors
Social Support
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http://resolver.tudelft.nl/uuid:e8dd18a7-7cd2-458b-83a4-c6bb5bed4134
DOI
https://doi.org/10.1159/000081906
TNO identifier
238310
ISSN
1015-9770
Source
Cerebrovascular Diseases, 19 (1), 11-17
Document type
article