Print Email Facebook Twitter Level of agreement between patient self-report and observer ratings of health-related quality of life communication in oncology Title Level of agreement between patient self-report and observer ratings of health-related quality of life communication in oncology Author Hilarius, D.L. Kloeg, P.H.A.M. Detmar, S.B. Muller, M.J. Aaronson, N.K. TNO Preventie en Gezondheid Publication year 2007 Abstract Objective: To determine the level of agreement between patients and observers regarding the frequency with which health-related quality of life topics are discussed during outpatient clinical oncology visits. Methods: The sample (n = 50) consisted of a consecutive series of cancer patients undergoing chemotherapy. Both the patients and observers used a checklist to report which HRQL topics had been discussed during the consultation. Percentage of agreement, kappa and adjust-kappa statistics were calculated. Results: The percentage agreement between patients' and observers' ratings was generally high, ranging from 74% for fatigue to 96% for sleep problems and cognitive functioning. The average percentage of agreement over the 13 HRQL topics rated was 86%. Cohen's kappa varied between 0.41 (for pain) and 0.78 (for sleep problems). Prevalence-adjusted kappa's were generally higher, ranging from 0.48 (for fatigue) to 0.92 (for sleep problems and social functioning). The average Cohen's kappa and prevalence-adjusted kappa over the 13 HRQL topics were 0.56 and 0.71, respectively. Level of agreement was not found to vary significantly as a function of patients' background characteristics. Conclusion: Oncology patients' self-reports of the HRQL-related topics discussed during outpatient chemotherapy visits are in reasonably close agreement with those provided by observers. Practice implications: Our results indicate that the patient is a legitimate source of information about the HRQL-related content of medical encounters, and thus can be used in communication studies where the collection of observational data (e.g., via audio- or videotaping) is either too costly or logistically impractical. © 2006 Elsevier Ireland Ltd. All rights reserved. Chemicals / CAS: Antineoplastic Agents Subject HealthCommunication researchHealth-related quality of lifeLevel of agreementObserver ratingsPatient self-reportCancer centerCancer chemotherapyCancer fatigueCancer patientCognitionConsultationDemographyObservationObservational studyOutpatient carePrevalenceQuality of life indexSample sizeSelf reportSleep disorderSocial interactionStatistical analysisAdultAgedAmbulatory CareAntineoplastic AgentsAttitude of Health PersonnelAttitude to HealthCommunicationData CollectionFemaleHospitals, CommunityHumansMaleMedical OncologyMiddle AgedNeoplasmsNetherlandsNurse-Patient RelationsNursing AssessmentNursing Evaluation ResearchNursing Methodology ResearchNursing Staff, HospitalOncologic NursingQuality of Life To reference this document use: http://resolver.tudelft.nl/uuid:cbbee883-2dd2-4509-a9a7-822d6a45513d DOI https://doi.org/10.1016/j.pec.2006.06.002 TNO identifier 239813 ISSN 0738-3991 Source Patient Education and Counseling, 65 (1), 95-100 Document type article Files To receive the publication files, please send an e-mail request to TNO Library.