Print Email Facebook Twitter The development and validation of a handicap questionnaire for children with a chronic illness Title The development and validation of a handicap questionnaire for children with a chronic illness Author Detmar, S.B. Hosli, E.J. Chorus, A.M.J. van Beekum, T. Vogels, T. Mourad-Baars, P.E.C. Engelberts, A.C. Groothuis - Oudshoorn, C.G.M. Verrips, G.H.W. Publication year 2005 Abstract Introduction: This paper describes the development and initial psychometric evaluation of the Handicap Scale for Children (HSC). This questionnaire is based on the London Handicap Scale (LHS), a valid and reliable utility instrument for measuring social participation in adults. Methods: A multidisciplinary research group was involved in developing the HSC. The questionnaire was tested in 114 children with a chronic disease and 239 healthy children in the 8-18 age range. Relating the Health Utility Index Mark 3 (HUI3) attributes to corresponding HSC scores tested the assumption that a negative health status would lead to participation problems. Results: Questionnaire development resulted in a five-dimension questionnaire: mobility, physical independence, daily activities, social integration and orientation. Each dimension included one item with a six-point response scale. A higher score indicates greater handicap. Feasibility testing with 10 children showed that none of the children experienced difficulties in filling in the questionnaire. Conceptual validity, measured by correlations between the dimensions of the HSC and HUI3, was satisfactory. As expected, moderate correlation coefficients between predefined pairs of HUI and HSC attributes were found; other correlation coefficients were low. Criterion validity was also satisfactory, as shown by large differences between the healthy and the chronically ill group and by several criteria within the chronically ill group. Conclusion: Based on this initial evaluation, the questionnaire seems feasible and valid for use with children in the age range 8-18 years. © 2005 Edward Arnold (Publishers) Ltd. Subject HealthAdultAgeControlled studyCorrelation analysisDaily life activityDisabilityExperienceHandicapped childHealth statusIndependenceMajor clinical studyMedical researchMobilizationOrientationPhysical capacityPsychometryQuality of lifeRating scaleReliabilitySchool childScoring systemSocial behaviorSociologyTask performanceUnited KingdomValidation processAdolescentCase-Control StudiesChildChronic DiseaseDisability EvaluationFeasibility StudiesFemaleHumansMalePsychometricsQuestionnairesReproducibility of Results To reference this document use: http://resolver.tudelft.nl/uuid:20809392-23dd-486d-890c-ca34dcef5881 DOI https://doi.org/10.1191/0269215505cr825oa TNO identifier 238271 ISSN 0269-2155 Source Clinical Rehabilitation, 19 (1), 73-80 Document type article Files To receive the publication files, please send an e-mail request to TNO Library.