Print Email Facebook Twitter Reporting health-related quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: Is it effective? Title Reporting health-related quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: Is it effective? Author Engelen, V. Detmar, S. Koopman, H. Maurice-Stam, H. Caron, H. Hoogerbrugge, P. Egeler, R.M. Kaspers, G. Grootenhuis, M. Publication year 2012 Abstract Background: The aim of the current study is to investigate the effectiveness of an intervention that provides health-related quality of life (HRQOL) scores of the patient (the QLIC-ON PROfile) to the pediatric oncologist. Procedure: Children with cancer participated in a sequential cohort intervention study: intervention N=94, control N=99. Primary outcomes of effectiveness were communication about HRQOL domains (t-test, Mann-Whitney U-test) and identification of HRQOL problems (chi-squared test). Secondary outcomes were satisfaction (multilevel analysis), referrals (chi-squared test), and HRQOL (multilevel analysis). Results: The QLIC-ON PROfile increased discussion of emotional functioning (control M=32.9 vs. intervention M=47.4, P<0.05) and psychosocial functioning (M=56.9 vs. M=63.8, P<0.05). Additionally more emotional problems remained unidentified in the control compared to the intervention group, for example, anger (control 26% vs. intervention 3%, P<0.01), fear (14% vs. 0%, P<0.01), and sadness (26% vs. 0%, P<0.001). The intervention had no effect on satisfaction and referrals, but did improve HRQOL of patients 5-7 years of age with respect to self-esteem (P<0.05), family activities (P<0.05), and psychosocial functioning (P<0.01). Conclusions: We conclude that a PRO is a helpful tool for systematic monitoring HRQOL of children with cancer, without lengthening the duration of the consultation. It is recommended to be implemented in clinical practice. © 2011 Wiley Periodicals, Inc. Subject Healthy LivingHL - Healthy for LifeThemalijnHealthy LivingCommunicationMonitoringOncologyPatient reported outcomesPediatricsQuality of lifeadolescentadultangerarticlechildchildhood cancerclinical effectivenesscohort analysiscontrolled studyemotionfamily functioningfearfemalefollow uphumanintervention studymajor clinical studymaleoutcome assessmentpatient referralpatient satisfactionpreschool childpriority journalquality of lifesadnessschool childself esteemsocial psychology To reference this document use: http://resolver.tudelft.nl/uuid:dc5a2719-59ed-46f4-a6a5-b60316679a1b DOI https://doi.org/10.1002/pbc.23158 TNO identifier 447241 ISSN 1545-5009 Source Pediatric Blood and Cancer, 58 (5), 766-774 Document type article Files To receive the publication files, please send an e-mail request to TNO Library.