Title
Health related quality of life problems of children aged 8-11 years with a chronic disease
Author
Grootenhuis, M.A.
Koopman, H.M.
Verrips, G.H.W.
Vogels, A.G.C.
Last, B.F.
TNO Kwaliteit van Leven
Publication year
2007
Abstract
In paediatric research, Health-Related Quality-of-Life (HRQoL) has received increasing recognition as an important health outcome. This study aimed to investigate the nature and prevalence of HRQoL problems in children with different chronic diseases. Data were available on 318 children aged 8-11 years with different diseases: congenital heart disease (n = 50); coeliac disease (n = 105); asthma (n = 32); cancer (n = 23); juvenile chronic arthritis (n = 45); children with capillary haemangioma (n = 25) and severe meningococcal disease (n = 38). They all answered a validated generic instrument [TNO-AZL Children's Quality of life questionnaire] (TACQoL), in the outpatient clinic or at home. Analyses of variance were performed to investigate differences in mean scores for children with chronic conditions in comparison to healthy children. Prevalence of children at risk for substantial HRQoL problems was based on the 25th percentile in the norm population. In comparison to healthy children, only a small number of differences were found in mean scores of children studied. In contrast, prevalence of HRQoL problems in children with chronic diseases was higher in several domains. It is concluded that using an indicator variable of the norm 25th percentile seems important in identifying at-risk children with chronic disease. © 2007 Informa UK Ltd.
Subject
Health
Childhood
Consequences
Health-related quality-of-life
Analysis of variance
Cancer
Capillary hemangioma
Comparative study
Congenital heart disease
Controlled study
Home
Juvenile rheumatoid arthritis
Major clinical study
Meningococcosis
Outpatient department
Pediatrics
Prevalence
Quality of life
Questionnaire
School child
Congenital heart malformation
Daily life activity
Motor performance
Psychological aspect
Activities of Daily Living
Arthritis, Juvenile Rheumatoid
Asthma
Celiac Disease
Child
Chronic Disease
Cognition
Emotions
Female
Health Status
Heart Defects, Congenital
Hemangioma, Capillary
Humans
Male
Meningococcal Infections
Motor Skills
Neoplasms
Personal Autonomy
Quality of Life
Risk Assessment
Social Behavior
To reference this document use:
http://resolver.tudelft.nl/uuid:d458de25-6786-4c88-bd4d-101baabdd355
TNO identifier
277942
Source
Developmental Neurorehabilitation, 10 (1), 27-33
Document type
article