Print Email Facebook Twitter What really matters: An inquiry into the relative importance of dimensions of informal caregiver burden Title What really matters: An inquiry into the relative importance of dimensions of informal caregiver burden Author van Exel, N.J.A. Brouwer, W.B.F. van den Berg, B. Koopmanschap, M.A. van den Bos, G.A.M. TNO Preventie en Gezondheid Publication year 2004 Abstract Objective: Prevailing measures of subjective caregiver burden either have no overall summary score or do not consider the relative importance caregivers attach to different dimensions of burden. Our aim was to assess which dimensions informal caregivers perceive as being important to their overall burden from care giving. Design: Cross-sectional. Subjects: Data were pooled from two Dutch samples of primary informal caregivers covering a wide range of chronic care-giving situations: caregivers for stroke survivors (n = 196) and caregivers for individuals with rheumatoid arthritis (RA) (n = 131). Main measures: Subjective burden of care giving was assessed using the Caregiver Reaction Assessment (CRA) and the Self-Rated Burden scale (SRB). Results: In the total sample four of the five dimensions of the CRA were found to contribute to the overall subjective burden experienced by informal caregivers. In the individual stroke and RA samples only two of the five dimensions emerged as relevant. SRB scores were significantly higher for caregivers of stroke patients, but no differences were found for the five dimensions of the CRA between the two samples. Conclusions: The dimensions of CRA are not equally important to the overall subjective burden of informal caregivers. To assess overall subjective burden, a measure based on a caregiver's own assessment of burden such as SRB needs to be used in addition to prevailing measures. © Arnold 2004. Subject HealthAdultAgedBody burdenCaregiverCerebrovascular accidentClinical studyControlled studyFunctional assessmentHealth statusMajor clinical studyNetherlandsPatient careQuality of lifeRating scaleRheumatoid arthritisScoring systemSelf conceptStatistical significanceTask performanceArthritis, RheumatoidCaregiversCerebrovascular AccidentCost of IllnessCross-Sectional StudiesFemaleHumansMaleMiddle AgedStress, Psychological To reference this document use: http://resolver.tudelft.nl/uuid:7f08b181-d4d1-43d2-870f-acbdf0514200 DOI https://doi.org/10.1191/0269215504cr743oa TNO identifier 237950 ISSN 0269-2155 Source Clinical Rehabilitation, 18 (6), 683-693 Document type article Files To receive the publication files, please send an e-mail request to TNO Library.