Print Email Facebook Twitter The use of focus groups in the development of the KIDSCREEN HRQL questionnaire Title The use of focus groups in the development of the KIDSCREEN HRQL questionnaire Author Detmar, S.B. Bruil, J. Ravens-Sieberer, U. Gosch, A. Bisegger, C. TNO Kwaliteit van Leven Publication year 2006 Abstract There is increasing interest in the public health sector in the health-related quality of life (HRQL) of healthy children. However, most HRQL instruments are developed for children with a chronic illness. In addition, existing questionnaires are mostly based on expert opinion about what constitutes HRQL and the opinions and views of healthy children are seldom included. In the European project KIDSCREEN, a generic questionnaire was developed for children between the ages of 8 and 18 on the basis of children's opinions about what constitutes HRQL. Focus group discussions were organised in six European countries to explore the HRQL as perceived by children. There were six groups in each country, stratified by gender and age. The age groups were 8-9 years, 12-13 years, and 16-17 years, with 4-8 children in each group. Experienced moderators guided the discussions. The full discussions were audiotaped, transcribed and content-analysed. The discussions went smoothly, with much lively debate. For the youngest group, the most important aspect of their HRQL was family functioning. For both younger and older adolescents, social functioning, including the relationship with peers, was most important. Children in all groups considered physical and cognitive functioning to be less important than social functioning. These key findings were taken into account when designing the KIDSCREEN HRQL questionnaire for healthy children and adolescents, with more emphasis being placed on drawing up valid scales for family and social functioning. In addition, items were constructed using the language and lay-out preferred by the youngsters themselves. We conclude that focus groups are a useful way of exploring children's views of HRQL, showing that an emphasis should be placed on constructing valid social and family scales. © 2006 Springer Science+Business Media B.V. Subject HealthAdolescentsChildrenFocus groupsHRQL questionnaire developmentQualitative researchAdultAudio recordingChronic diseaseCognitionFamily functioningHuman experimentInformation processingPeer groupPhysical developmentpriority journalSchool childSocial interactionAdolescent PsychologyAttitude to HealthChildChild PsychologyEuropeFemaleHealth StatusHumansMaleQuality of LifeQuestionnaires To reference this document use: http://resolver.tudelft.nl/uuid:7c926b1a-00e8-4c6e-a7eb-f02821a8d9e8 DOI https://doi.org/10.1007/s11136-006-0022-z TNO identifier 239564 ISSN 0962-9343 Source Quality of Life Research, 15 (8), 1345-1353 Document type article Files To receive the publication files, please send an e-mail request to TNO Library.