Title
The attitudes and intention to participate in hemoglobinopathy carrier screening in the Netherlands among individuals from turkish, moroccan, and surinamese descent
Author
van der Pal, S.M.
van Kesteren, N.M.C.
van Wouwe, J.P.
van Dommelen, P.
Detmar, S.B.
Publication year
2013
Abstract
Objective. To explore factors that influence intention to participate in hemoglobinopathy (HbP) carrier screening under Dutch subjects at risk, since HbP became more common in The Netherlands. Method. Structured interviews with 301 subjects from Turkish, Moroccan, or Surinamese ethnicity. Results. Half of the participants were familiar with HbP, 27% with carrier screening. Only 55% correctly answered basic knowledge items. After balanced information, 83% percent of subjects express intention to participate in HbP carrier screening. Intention to participate was correlated with (1) anticipated negative feelings, (2) valuing a physician's advice, and (3) beliefs on significance of carrier screening. Risk perception was a significant determinant, while respondents were unaware of HbP as endemic in their country of birth. Respondents preferred screening before pregnancy and at cost < 50. Conclusion. These findings show the importance of informing those at risk by tailored health education. We propose easy access at no costs for those willing to participate in HbP carrier screening. © 2013 Sylvia M. van der Pal et al.
Subject
EELS - Earth, Environment and Life Sciences
Human
Healthy Living
Healthy for Life
CH - Child Health LS - Life Style
To reference this document use:
http://resolver.tudelft.nl/uuid:3f008d7c-f8f4-41ac-8bf5-d11759b54973
DOI
https://doi.org/10.1155/2013/374831
TNO identifier
485663
ISSN
1687-9805
Source
Journal of Environmental and Public Health, 2013 (2013)
Document type
article